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TSC News
Save the date! When: Saturday May 11th Where: Fota Wildlife Park, Co. Cork More details to follow here and on our FaceBook page. We would love to see as many families and individuals affected by TSC as possible in Cork! Great opportunity to meet others in the same boat and have a fun day out...
Part 3: Strategies for Sleep Join us as for the 3rd part in our Sleep Webinar series as Dr Stacey Bissell brings us some more useful insight into how sleep is affected in TSC and useful strategies particularly around medication, work and school. Zoom link to follow soon
The National Stud, Kildare We had a wonderful day out at the National Stud and Japanese Gardens in Kildare on 15th Oct. The sun shone on a beautiful crisp Oct day and definitely added to the experience! We enjoyed an interesting tour of the stud and grounds and had the chance to feed carrots to...
January 2024 Issue Current Issue Table of Contents: Epilepsy & Behavior (epilepsybehavior.com) Some articles in the above issue are available for free as Open Access.
Understanding the impact of tuberous sclerosis complex: development and validation of the TSC-PROM | BMC Medicine | Full Text (biomedcentral.com)
Background: Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, associated with physical, sensory and intellectual disability. Patients require follow-up management from multiple medical specialists and health and social care professionals involving a high level of integrated care, service coordination and specified care pathways. Designing rare disease care pathways in the Republic of...
A prospective longitudinal study https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/dmcn.15765
Sleep in Adults with TSC Following on from the introductory webinar please join TSC Ireland and Dr Stacey Bissell for a session focussing on sleep challenges for Adults with TSC and some ideas to help manage these issues. Mon 4th Dec 8pm -8.45 Recording of Webinar available at the link below https://bham-ac-uk.zoom.us/rec/share/HqeYZ4wzTVIGc274pHr21u14EXpyCzbftm3qQSDaw2BvumKyrfPBspF7y-ll5HNz.-FOJMZdk_oMK1o-S Password: &BA*a7%+
Dr Stacey Bissell BSc, MRes, PhD Dr Stacey Bissell is an Assistant Professor in the School of Psychology, University of Birmingham. She has a specific research background in tuberous sclerosis complex, helping to develop guidelines and recommendations for TSC-Associated Neuropsychiatric Disorders (TAND) as part of the international TAND consortium. She specialises in sleep-focused and behavioural research...

TSC Ireland

TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.

Recent Articles

Sleep & TSC Webinar
February 11, 2024
TSC: Diagnostic Criteria, Surveillance and Management Recommendations
January 30, 2024
TSC Ireland Family Fun Day 2023
January 18, 2024