Sat 12th Oct, 10-4pm The Grand Hotel, Malahide Join us for our annual patient and family conference this October! We have an excellent line up of Irish and International clinicians who will present clinical information...
‘Stepping into the shoes of young people & families with rare renal disorders moving between child and adult services.’ This research project is being undertaken Melissa Kinch based in CHI Crumlin and UCD as part...
An exciting opportunity to take part in TSC specific research! Dr Stacey Bissell is an Assistant Professor in the School of Psychology, University of Birmingham. She has a specific research background in tuberous sclerosis complex...
Read the inspiring story of our wonderful Mary Vasseghi and the superb research she is conducting on TSC in Ireland with Future Neuro. Mary is a key figure in our TSC Ireland committee and is...
We supported the Rare Diseases campaign that launched on Rare Disease Day (February 29th) in the Irish Independent and online at HealthNews.ie Rare Diseases looked at all things going on in the Rare Disease community...
Insights From Paediatric & Adult Epilepsy Nurses We are delighted to welcome Claire Behan and Ann Connolly two Epilepsy Advanced Nurse Practitioners based in St James’s Hospital and Tallaght University Hospital respectively. Please join us...
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