Our Journey

Supporting Each Other

Every journey bringing a different challenge.

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Our Journey

Supporting Each Other

Every journey bringing a different challenge.

Contact Us
TSC Ireland is an Irish Support Group to create awareness of Tuberous Sclerosis Complex (TSC) disorder. The group consists of family members affected by TSC, or other related illnesses, such as autism and epilepsy. We also have members with a genuine care for the well-being of others.

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Tuberous Sclerosis Complex (TSC) is a genetic disorder that causes tumors to form in many different organs. The organs mainly affected are the brain, eyes, heart, kidney, skin and lungs. The term TSC is used in scientific literature to distinguish Tuberous Sclerosis Complex from Tourette’s Syndrome.

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Diagnosis of Tuberous Sclerosis Complex (TSC) is currently made after a series of tests have been carried out: a brain MRI or CT Scan, renal ultrasound, echocardiogram of the heart, EKG, eye exam and a Wood’s Lamp evaluation of the skin.

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Signs & Symptoms of TSC

Because TSC affects no two people the same, there is no sure way to predict where and how the disorder will manifest. To better understand its potential impact, click below on the organs most often targeted.

  • Brain

    Several types of brain lesions are seen in individuals with… Read More

  • Eyes

    The appearance of retinal lesions varies from the classic… Read More

  • Kidneys

    Tuberous Sclerosis Complex (TSC) can present itself as… Read More

  • Skin

    Individuals with Tuberous Sclerosis Complex (TSC) often… Read More

  • Lungs

    The three main pulmonary lesions found in (TSC) are… Read More

  • Heart

    Testing of the heart using echocardiography is often… Read More

  • Teeth

    Oral/dental health is a critical part of maintaining overall… Read More

  • Other

    Cysts and tumors similar to those observed in the kidney… Read More

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