Tuberous sclerosis complex (TSC), is a rare genetic disease that causes non-cancerous (benign) tumours to grow in different areas of the body, most commonly the brain, kidneys, skin, heart, and lungs. The name tuberous sclerosis comes from the characteristic tuber or potato-like nodules in the brain, which are affected by calcium with age and become hard or sclerotic.
You or a family member may have just been diagnosed with Tuberous Sclerosis Complex (TSC). Your next question may be now what? Tuberous Sclerosis Complex Ireland (TSC Ireland) is here to assist you, to offer you hope, to provide information and to direct you to resources that may be helpful to you in your journey.
Because TSC affects no two people the same, there is no sure way to predict where and how the disorder will manifest. To better understand its potential impact, click below on the organs most often targeted.
Tuberous Sclerosis Complex Ireland (TSC Ireland) is a volunteer-run organisation founded by parents of children with TSC. Our mission is to raise awareness of TSC in Ireland and to provide support and information to individuals and their families who are living with the condition. We strive to build a community of people that understands and shares in this unique journey and can lean on each other for support.
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By raising awareness of TSC both in the general public and across the health service we can increase the visibility of this rare condition. We advocate for the provision of the best possible care for all that is in line with international clinical guidelines.
By providing information, including access to up-to-date knowledge from expert clinicians and researchers working in the area of TSC both within Ireland and internationally via webinars and our annual in person conference.
And in the process fostering a sense of belonging to a community for everyone affected by TSC in Ireland. We do this via our active facebook page and WhatsApp group and also through hosting regular in person events like Family Fun Days and Social events for Adults with TSC.
We are raising funds to help provide information and support to Patients, Families and Carers affected by Tuberous Sclerosis Complex.
Carmichael House, 4 North Brunswick St, Dublin, D07 RHA8
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