What is TSC?

Tuberous sclerosis complex (TSC), is a rare genetic disease that causes non-cancerous (benign) tumours to grow in different areas of the body, most commonly the brain, kidneys, skin, heart, and lungs. The name tuberous sclerosis comes from the characteristic tuber or potato-like nodules in the brain, which are affected by calcium with age and become hard or sclerotic.

TSC Diagnosis

You or a family member may have just been diagnosed with Tuberous Sclerosis Complex (TSC). Your next question may be now what? Tuberous Sclerosis Complex Ireland (TSC Ireland) is here to assist you, to offer you hope, to provide information and to direct you to resources that may be helpful to you in your journey.

Signs and symptoms of tuberous sclerosis complex (TSC)

Because TSC affects no two people the same, there is no sure way to predict where and how the disorder will manifest. To better understand its potential impact, click below on the organs most often targeted.

Brain

Several types of brain lesions are seen in individuals with… read more

Lungs

The three main pulmonary lesions found in (TSC) are…read more

Eyes

The appearance of retinal lesions varies from the classic… read more

Heart

Testing of the heart using echocardiography is often…read more

Kidneys

Tuberous Sclerosis Complex (TSC) can present itself as… read more

Teeth

Oral/dental health is a critical part of maintaining overall… read more

Skin

Individuals with Tuberous Sclerosis Complex (TSC) often… read more

More

Cysts and tumors similar to those observed in the kidney… read more
Our Story
Who are we?

Tuberous Sclerosis Complex Ireland (TSC Ireland) is a volunteer-run organisation founded by parents of children with TSC. Our mission is to raise awareness of TSC in Ireland and to provide support and information to individuals and their families who are living with the condition. We strive to build a community of people that understands and shares in this unique journey and can lean on each other for support.

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followers on facebook

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Meetings and events

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Sleepless nights

News & Updates

TSC & Sleep Research Project – Take Part!!

An exciting opportunity to take part in TSC specific research! Dr Stacey Bissell is an Assistant Professor in
Read More

Rare Disease Day 2024

Read the inspiring story of our wonderful Mary Vasseghi and the superb research she is conducting on TSC
Read More

Rare Disease Day 2024

We supported the Rare Diseases campaign that launched on Rare Disease Day (February 29th) in the Irish Independent
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Tuberous Sclerosis Complex & Epilepsy Management Across the Lifespan

Insights From Paediatric & Adult Epilepsy Nurses We are delighted to welcome Claire Behan and Ann Connolly two
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Family Fun Day 2024!!

Save the date! When: Saturday May 11th Where: Fota Wildlife Park, Co. Cork More details to follow here
Read More

Sleep & TSC Webinar Part 3

Part 3: Strategies for Sleep You can access the 3rd part in our Sleep Webinar series below as
Read More
01

We're raising awareness

By raising awareness of TSC both in the general public and across the health service we can increase the visibility of this rare condition. We advocate for the provision of the best possible care for all that is in line with international clinical guidelines.

02

We're supporting patients

By providing information, including access to up-to-date knowledge from expert clinicians and researchers working in the area of TSC both within Ireland and internationally via webinars and our annual in person conference.

03

We're establishing a community

And in the process fostering a sense of belonging to a community for everyone affected by TSC in Ireland. We do this via our active facebook page and WhatsApp group and also through hosting regular in person events like Family Fun Days and Social events for Adults with TSC. 

Donate Today

We are raising funds to help provide information and support to Patients, Families and Carers affected by Tuberous Sclerosis Complex.

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  • Get in touch with us today info@tscireland.org

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