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COS4TAND - Research Participation Opportunity
Mary Vasseghi Mary Vasseghi

COS4TAND - Research Participation Opportunity

We are looking for individuals with Tuberous Sclerosis Complex (TSC) and their caregivers to participate in an online focus group or interview to identify important outcomes for people with TSC.

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Infantile Spasms Awareness Week
Andrew Kenneally Andrew Kenneally

Infantile Spasms Awareness Week

Infantile Spasms Awareness Week is an important time for families affected by Tuberous Sclerosis Complex (TSC). Infantile spasms (IS), also known as West Syndrome, are a rare but serious type of seizure that typically appear in the first year of life. For children with TSC, these seizures are more common, and early recognition and treatment can make a significant difference in long-term developmental outcomes.

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