This Christmas, please consider a donation to TSCIreland to bring support and hope to people living with Tuberous Sclerosis Complex and their families across Ireland. Your gift will fund vital services, advocacy, and education. Together, we can strengthen our TSC community—one act of generosity at a time.

This global survey initiative was open to anyone from any country in the world who is living with a rare disease, as well their family members and carers. The more people who respond and share their experiences, the more powerful our voice will be! All responses were anonymous and kept in secure storage only accessible to our research team.

We are looking for individuals with tuberous sclerosis complex (TSC) and their caregivers to participate in an online focus group or interview to identify important outcomes for people with TSC.