Minister for Health publishes the National Rare Disease Strategy 2025-2030
Minister for Health, Jennifer Carroll MacNeill TD, has today launched the National Rare Disease Strategy 2025-2030. This landmark strategy sets out a vision to improve the lives of the estimated 300,000 people living with rare diseases in Ireland.
Calling Parents and Guardians of Children with Rare Diseases!
Calling Parents and Guardians of Children with Rare Diseases! Do you care for a child with a rare disease in Ireland or Northern Ireland? We want to hear from you. Researchers at University College...
Impressions from Neuroscience 2024 in Chicago
My name is Judith Evers (Ph.D.), I am a neuroscientist; I am also a mother to an adorable son who happens to have TSC. As part of my work as a neuroscientist, I presented at Neuroscience 2024 in Chicago this October. At the same time, I used the opportunity to get an update on the TSC space and would like to tell you a little about what I learnt about research in TSC while I was there.