Information/Resources
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CIH Information Hub - A Central Information Hub for Children in Ireland
Citizens Information - For public services and the entitlements of citizens in Ireland
Department of Social Protection - Carer’s allowance, benefits and the domiciliary care allowance
Drug Payment Scheme Card - For prescribed medications, rental costs for oxygen and more
Incapacitated Child Tax Credit - For parent’s whose child is permanently incapacitated
Long Term Illness Scheme - Get drugs, medicines and medical appliances for free
Schemes and Allowances - Apply for benefits and schemes that can help with healthcare costs
SteppingUp.ie - Supporting people with moving to adult health care
Taking Time Off Work - The different types of leave or “time off“ that employees can take from work
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ADHD Ireland - Information, resources and networking opportunities to individuals with ADHD
Barretstown - Camps and programmes for children and families affected by serious illness
Family Carers Ireland - Provide Support For Family Carers Alongside Positive Impacts
Inclusion Ireland - The National Organisation for People with an Intellectual Disability
Irish Kidney Association - Meeting the needs of renal patients and their families and carers
Irish Society for Autism - Provides services and supports to people with a diagnosis of autism
Jack and Jill - Provides funding, nursing, respite and advocacy
Make-A-Wish Ireland - Create wishes for children with critical illness
Rare Diseases Ireland - Committed to the identification, treatment, and cure of rare disease
Rare Ireland - The voice for families living with rare conditions in Ireland
SteppingUp.ie - Supporting people with moving to adult health care
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TAND Profile: Educators should monitor for Tuberous Sclerosis Neuropsychiatric disorders (TAND) which include behavioural, psychiatric, intellectual, and academic difficulties. https://tandconsortium.org/
Epilepsy Management: Seizures are common, requiring staff to be trained in seizure action plans and medication awareness.
Individualised Approach: Because TSC affects everyone differently, strategies should be tailored to the child's specific cognitive and behavioural needs.
Behavioural Support: Strategies may be needed for potential impulsivity, hyperactivity, anxiety, or challenges with social communication.
Teachers are encouraged to work in partnership with parents and medical professionals to support the student, to create an inclusive environment.
Useful Resources
Tuberous Sclerosis Australia - Introductory Guide to TSC for Teachers and Educators
Tuberous Sclerosis Complex Alliance USA - Educational Support
