Rare Disease Cost Diaries: Economic Impact

This project is part of a larger research project on the social and economic impacts of living with a rare disease for families of children with rare diseases across Ireland and Northern Ireland. This research is part of a PhD project and is conducted by researchers from University College Dublin.

We are conducting a cost diary study, which aims to record how much you spend related to your child’s rare disease. Please contact niamh.buckle@ucdconnect.ie.