Background: Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, associated with physical, sensory and intellectual disability. Patients require follow-up management from multiple medical specialists and health and social care professionals involving a high level of integrated care, service coordination and specified care pathways. Designing rare disease care pathways in the Republic of Ireland: a co-operative model | Orphanet Journal of Rare Diseases | Full Text (biomedcentral.com)Read More
Date and time: Friday, 7 July 2023 from 08:30 until 5pm. Location: Trinity Biomedical Sciences Institute152 – 160 Pearse Street D02 R590 Dublin About this event It is with great pleasure that The European Tuberous Sclerosis Complex Association in collaboration with the Tuberous Sclerosis Complex Association Ireland invite you to join us at the DEA Pit Stop in Dublin, Ireland. Hosting clinicians: Prof. Colin P Doherty MD FRCPI: Ellen Mayston Bates Professor of Epileptology and Head of School, Trinity Col- lege Dublin, Ireland Prof. Andrew Green: Professor of Medical Genetics, UCD School of Medicine and Medical Science; Consultant in Clinical...Read More
VENUE: The Irish National Stud & Japanese Gardens TIME: 12:00 PM DATE: 31st August 2019 A light meal will be provided, numbers are limited. Please RSVP no later than August 15th to [email protected]Read More
Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co. Dublin Date: Saturday, May 12th 2018. Time: 10:00 to 13:00. Guest Speakers: Professor Andrew Tee, Senior Lecturer and Clinical Geneticist, University of Cardiff, Wales. Professor Tee is an international expert in cellular biology and genetics. He played a central role in identifying the key cellular pathways responsible for the development of Tuberous Sclerosis Complex. His research led to successful clinical trials using mTOR inhibitors to treat patients with TSC. Professor Tee will deliver a lecture on the current therapeutic developments for TSC. Ms. Patricia Byrne is the Principal Clinical Psychologist at...Read More
Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co.Dublin. Date: Saturday, May 13th 2017. Time: 10:00 to 14:00. Guest Speakers: Professor Patrick Bolton, BSc, MA, PhD, MBBS, FRCPsych Professor of Child and Adolescent Psychiatry at Kings College Hospital, Institute of Psychiatry, London. Dr. Peter Lavin MRCPI Consultant Renal Physician at The Adelaide & Meath Hospital, Tallaght. Dr. Helena Rushe & Dr. Cathy Madigan Dr. Helena Rushe, Senior Clinical Psychologist. Dr. Cathy Madigan, Principal Specialist in Paediatric Clinical Neuropsychology, The Children’s University Hospital, Temple Street, Dublin. Dr. Colin Doherty The meeting will be chaired by Dr. Colin Doherty, Consultant Neurologist, St....Read More
May 15th 2015 is TSC Global Awareness Day. We are delighted to inform you that TSC Ireland will be launching their website on this day. The launch coincides with the TSC Lecture in Trinity College at 2:00pm. The website has been sponsored by Conappsols. We would like to express our gratitude to Gerard Norris and Conappsols for their ongoing sponsorship, of our website. Venue: The Catherine McCauley Centre, Mater University Hospital, Eccles Street, Dublin 7. Date: Friday, May 13th 2016. Time: 14:00 to 17:00.Read More
Venue: The Catherine McCauley Centre, Mater University Hospital, Eccles Street, Dublin 7. 威而鋼 Date: Friday, May 13th 2016. Time: 14:00 to 17:00. Guest Speakers: Dr. Finbar O’Callaghan Consultant Paediatric Neurologist Great Ormond Street Children’s Hospital, London, United KingdomProfessor Alan Irvine Consultant Dermatologist Our Lady’s Hospital for Sick Children, Crumlin, Dublin Dr. Colin Doherty Consultant Neurologist St. James’s Hospital, Dublin to find a cure for TSCRead More
May 15th is Tuberous Sclerosis Complex Global Awareness Day. To help raise awareness TSC Ireland is delighted to inform you of an upcoming lecture taking place in Dublin. This lecture is aimed at families, parents & carers affected by TSC. Date: 15th May 2015 Venue: Trinity College Dublin, The Stanley Quek Theatre, Trinity Biomedical Sciences Institute, 152 – 160 Pearse Street. Speakers: Professor Eliz犀利士 abeth Thiele “Living With Tuberous Sclerosis Complex (TSC)” Dr Chris Kingswood “Care For Today, Hope For Tomorrow” Professor Elizabeth Thiele – Director Pediatric Epilepsy Program; Director, Herscot Center for Tuberous Sclerosis Complex, Massachusetts General Hospital; Professor of...Read More
TSC Ireland
TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.
