Background: Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, associated with physical, sensory and intellectual disability. Patients require follow-up management from multiple medical specialists and health and social care professionals involving a high level of integrated care, service coordination and specified care pathways. Designing rare disease care pathways in the Republic of...
Date and time: Friday, 7 July 2023 from 08:30 until 5pm. Location: Trinity Biomedical Sciences Institute152 – 160 Pearse Street D02 R590 Dublin About this event It is with great pleasure that The European Tuberous Sclerosis Complex Association in collaboration with the Tuberous Sclerosis Complex Association Ireland invite you to join us at the DEA...
VENUE: The Irish National Stud & Japanese Gardens TIME: 12:00 PM DATE: 31st August 2019 A light meal will be provided, numbers are limited. Please RSVP no later than August 15th to info@tscireland.org
Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co. Dublin Date: Saturday, May 12th 2018. Time: 10:00 to 13:00. Guest Speakers: Professor Andrew Tee, Senior Lecturer and Clinical Geneticist, University of Cardiff, Wales. Professor Tee is an international expert in cellular biology and genetics. He played a central role in identifying the key cellular pathways...
Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co.Dublin. Date: Saturday, May 13th 2017. Time: 10:00 to 14:00. Guest Speakers: Professor Patrick Bolton, BSc, MA, PhD, MBBS, FRCPsych Professor of Child and Adolescent Psychiatry at Kings College Hospital, Institute of Psychiatry, London. Dr. Peter Lavin MRCPI Consultant Renal Physician at The Adelaide & Meath Hospital,...
May 15th 2015 is TSC Global Awareness Day. We are delighted to inform you that TSC Ireland will be launching their website on this day. The launch coincides with the TSC Lecture in Trinity College at 2:00pm. The website has been sponsored by Conappsols. We would like to express our gratitude to Gerard Norris and...
Venue: The Catherine McCauley Centre, Mater University Hospital, Eccles Street, Dublin 7. 威而鋼 Date: Friday, May 13th 2016. Time: 14:00 to 17:00. Guest Speakers: Dr. Finbar O’Callaghan Consultant Paediatric Neurologist Great Ormond Street Children’s Hospital, London, United KingdomProfessor Alan Irvine Consultant Dermatologist Our Lady’s Hospital for Sick Children, Crumlin, Dublin Dr. Colin Doherty Consultant Neurologist...
May 15th is Tuberous Sclerosis Complex Global Awareness Day. To help raise awareness TSC Ireland is delighted to inform you of an upcoming lecture taking place in Dublin. This lecture is aimed at families, parents & carers affected by TSC. Date: 15th May 2015 Venue: Trinity College Dublin, The Stanley Quek Theatre, Trinity Biomedical Sciences...
TSC Ireland
TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.
