TSC Diagnosis

Newly diagnosed?

Tuberous Sclerosis Complex Ireland (TSC Ireland) is here to assist you, to offer you hope, to provide information and to direct you to resources that may be helpful to you in your journey.  We want to help, whether you have had the disorder for many years or if you are new to TSC. The first thing to understand is that TSC is a very complex disease that can be very overwhelming. Try to focus on the issues affecting your life right now. TSC affects all individuals differently, so what you might read about one person and how TSC impacts his or her life may be quite different from how it impacts your life.

We have lots of resources to help you understand more about the basics of the disorder.

Different aspects of the disease

How tuberous sclerosis affects you

It’s important to understand that different aspects of TSC affect an individual’s life at different times. For example, you may be concerned about the heart tumours in a newborn baby who has just been diagnosed with TSC, but a person in his or her 40s may be more concerned about the kidney tumours.

Learn more about the signs and symptoms here.

TSC Diagnosis

Diagnosis of Tuberous Sclerosis Complex (TSC) is currently made after a series of tests have been carried out: a brain MRI or CT Scan, renal ultrasound, echocardiogram of the heart, EKG, eye exam and a Wood’s Lamp evaluation of the skin.

Donate Today

We are raising funds to help provide information and support to Patients, Families and Carers affected by Tuberous Sclerosis Complex.