Read the inspiring story of our wonderful Mary Vasseghi and the superb research she is conducting on TSC in Ireland with Future Neuro. Mary is a key figure in our TSC Ireland committee and is doing exceptional work to improve the lives of everyone in Ireland living with TSC. Rare Disease Day 2024 – FutureNeuro (futureneurocentre.ie) Watch this video for more about Mary’s journey in the world of TSC research 🌍On #RareDiseaseDay, we stand with the 300 million people worldwide living with rare diseases. Meet @VasseghiMary, a trailblazer in Tuberous Sclerosis Complex (TSC) research in Ireland💙https://t.co/tsEcEuDZyi@rarediseaseday @scienceirl @TSC_Ireland @gastaut @tcddublin...Read More

We supported the Rare Diseases campaign that launched on Rare Disease Day (February 29th) in the Irish Independent and online at HealthNews.ie Rare Diseases looked at all things going on in the Rare Disease community from exciting treatment developments to advocating for change and recognition to shortening the diagnostic odyssey and featured insightful content from Rare Disease Ireland, EURORDIS, Rare Disease International, Science Foundation Ireland, Alexion, Alnylam Pharmaceuticals and more The full supplement is available to read here: https://www.healthnews.ie/rare-diseases/ The TSC Ireland article is available here: http://www.tinyurl.com/4erux44fRead More

Insights From Paediatric & Adult Epilepsy Nurses We are delighted to welcome Claire Behan and Ann Connolly two Epilepsy Advanced Nurse Practitioners based in St James’s Hospital and Tallaght University Hospital respectively. Please join us on the night for what promises to be a very informative and interesting session on a topic that is relevant to so many living with TSC. If you would like to submit a question for the speakers in advance please email [email protected] When: Tues 19th March, 7-8pm Where: Online via Zoom – click the link below to view a recording of the webinarRead More