Designing rare disease care pathways in the Republic of Ireland: a co-operative model

Background: Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, associated with physical, sensory and intellectual disability. Patients require follow-up management from multiple medical specialists and health and social care professionals involving a high level of integrated care, service coordination and specified care pathways.

Designing rare disease care pathways in the Republic of Ireland: a co-operative model | Orphanet Journal of Rare Diseases | Full Text (biomedcentral.com)

Related Posts

TSC Ireland

TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.

Recent Articles

Family Fun Day 2024!!
February 14, 2024
Sleep & TSC Webinar
February 11, 2024
TSC: Diagnostic Criteria, Surveillance and Management Recommendations
January 30, 2024