We are looking for individuals with tuberous sclerosis complex (TSC) and their caregivers to participate in an online focus group or interview to identify important outcomes for people with TSC.

The 2025 TSC Conferences, organised by the TSC team in St. James’s Hospital and TSC Ireland, was a warm, informative and hopeful event. It showcased the dedication of clinicians and researchers, highlighted the strength of the TSC community, and pointed toward a more connected and coordinated future for TSC care in Ireland.