Family Support Grant
Our Family Support Grant provides families and individuals living with TSC with financial support for medical or learning needs up to the value of €500 per family/individual.
Minister for Health publishes the National Rare Disease Strategy 2025-2030
Minister for Health, Jennifer Carroll MacNeill TD, has today launched the National Rare Disease Strategy 2025-2030. This landmark strategy sets out a vision to improve the lives of the estimated 300,000 people living with rare diseases in Ireland.
Notes from TSC Alliance 2025 Research Conference
TSC Alliance is a major driver in TSC research and has invested more than $37 million in research since 1984. That funding has led to additional finance from other sources and through collaboration with partners resulted in major scientific breakthroughs including six FDA approved treatments.