Minister for Health publishes the National Rare Disease Strategy 2025-2030
Minister for Health, Jennifer Carroll MacNeill TD, has today launched the National Rare Disease Strategy 2025-2030. This landmark strategy sets out a vision to improve the lives of the estimated 300,000 people living with rare diseases in Ireland.
Notes from TSC Alliance 2025 Research Conference
TSC Alliance is a major driver in TSC research and has invested more than $37 million in research since 1984. That funding has led to additional finance from other sources and through collaboration with partners resulted in major scientific breakthroughs including six FDA approved treatments.
Multi-stakeholder Tuberous Sclerosis Complex (TSC) Vision Lab workshop in St James’ Hospital
As part of Jazz pharmaceutical’s generous hands-off financial donation to St James’ Hospital Foundation, to improve TSC care in Ireland, a multi stakeholder workshop was held in St. James’ Hospital Dublin on the morning of June 6th, 2025.