Calling Parents and Guardians of Children with Rare Diseases! Do you care for a child with a rare disease in Ireland or Northern Ireland? We want to hear from you. Researchers at University College...

Paul Hession, Father to beautiful Matilda, joined his wonderful colleagues in Stryker Limerick in raising awareness and funds for TSC Ireland in April 2025.

A huge thanks to all involved!

A personalised model of care for developmental epileptic syndromes using Tuberous Sclerosis as an initial model of a service design in Republic of Ireland.