TSC Alliance is a major driver in TSC research and has invested more than $37 million in research since 1984. That funding has led to additional finance from other sources and through collaboration with partners resulted in major scientific breakthroughs including six FDA approved treatments.

As part of Jazz pharmaceutical’s generous hands-off financial donation to St James’ Hospital Foundation, to improve TSC care in Ireland, a multi stakeholder workshop was held in St. James’ Hospital Dublin on the morning of June 6th, 2025.

Calling Parents and Guardians of Children with Rare Diseases! Do you care for a child with a rare disease in Ireland or Northern Ireland? We want to hear from you. Researchers at University College...