TANDem-2 Project Open

TANDem-2 project is open for participants to register on the TAND Toolkit App and begin tracking TAND over time!

As the expert in your or your loved one's TAND, we invite you to participate in the TANDem-2 project. In TANDem-2, we want to understand how TAND change over time and what might influence these changes. We also want to learn more about caregiver wellbeing and how this is related to TAND severity. To do this we plan to use the TAND-SQ Checklist which is built into the TAND Toolkit App to track TAND severity over time in 500 people with TSC! You can join the study if you are over 18 and have TSC yourself, or are the parent or legal guardian of someone with TSC of any age. You can join from anywhere in the world but will need to complete the questionnaires in English. Visit https://tandconsortium.org/join-tandem-2 to find out more about joining the TANDem-2 research study and access the TAND Toolkit App.

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Mallorca 312 Cycle for TSC - John Horan

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WhatsApp Group for Adults with TSC in Ireland