TANDem-2 Project Open

TANDem-2 project is open for participants to register on the TAND Toolkit App and begin tracking TAND over time!

We are delighted to announce that the TANDem-2 project is open for participants to register on the TAND Toolkit App and begin tracking TAND over time! 

Visit https://tandconsortium.org/join-tandem-2 to find out more about joining the TANDem-2 research study and access the TAND Toolkit App.

To hear more about the TANDem-2 project and how to register and use the app to track TAND over time, click here to watch the recording of the TAND Toolkit App launch meeting that took place on 28 February 2026.

In TANDem-2, we want to understand how TAND change over time and what might influence these changes. We also want to learn more about caregiver wellbeing and how this is related to TAND severity. To do this we plan to use the TAND-SQ Checklist which is built into the TAND Toolkit App to track TAND severity over time in 500 people with TSC! You can join the study if you are over 18 and have TSC yourself, or are the parent or legal guardian of someone with TSC of any age. You can join from anywhere in the world but will need to complete the questionnaires in English.