Tuberous Sclerosis Complex (TSC) manifests itself in many different ways, but one factor individuals with TSC have in common is that they must live with the disorder their entire lives. As children, it means that their parents must face issues regarding education, health insurance and socialisation, among others.
As young adults, some of those affected by TSC may have to deal with a transition to independent living and employment while others may deal with dating issues and reproductive concerns. Throughout their lives, those affected with TSC must live with a permanent medical condition.
Family or personal relationships can become strained under the pressure. There are many support groups to assist with pressures of this nature. TSC Ireland are fully aware of the disorder and are well placed to provide support and assistance to those struggling when trying to get to grips with the disorder and the associated issues that arise from same.