[cs_content][cs_section bg_image=”https:\/\/tscireland.org\/wp-content\/uploads\/2018\/01\/skin_banner.jpg” parallax=”false” separator_top_type=”none” separator_top_height=”50px” separator_top_angle_point=”50″ separator_bottom_type=”none” separator_bottom_height=”50px” separator_bottom_angle_point=”50″ _order=”0″ class=”cs-hide-sm cs-hide-xs” style=”margin: 0px;padding: 45px 0px;”][cs_row inner_container=”true” marginless_columns=”false” style=”margin: 0px auto;padding: 0px;”][cs_column fade=”false” fade_animation=”in” fade_animation_offset=”45px” fade_duration=”750″ type=”1\/1″ class=”cs-ta-center” style=”padding: 0px;”][x_custom_headline level=”h2″ looks_like=”h2″ accent=”false” class=”cs-ta-center mtn, mbn” style=”color: hsl(0, 0%, 100%);font-style: italic;”]Supporting Each Other[\/x_custom_headline][x_custom_headline level=”h2″ looks_like=”h1″ accent=”false” class=”cs-ta-center mtn” style=”color: hsl(0, 0%, 100%);”]TSC Ireland[\/x_custom_headline][x_button shape=”pill” size=”large” block=”false” circle=”false” icon_only=”false” href=”\/contact” title=”” target=”” info=”none” info_place=”top” info_trigger=”hover” info_content=””]Contact Us[x_icon type=”lightbulb-o” class=”mvn mls mrn”][\/x_button][\/cs_column][\/cs_row][\/cs_section][cs_section bg_image=”https:\/\/tscireland.org\/wp-content\/uploads\/2018\/01\/skin_mobile.jpg” parallax=”false” separator_top_type=”none” separator_top_height=”50px” separator_top_angle_point=”50″ separator_bottom_type=”none” separator_bottom_height=”50px” separator_bottom_angle_point=”50″ class=”cs-hide-xl cs-hide-lg cs-hide-md” style=”margin: 0px;padding: 0px 0px 20px;”][cs_row inner_container=”true” marginless_columns=”false” style=”margin: 0px auto;padding: 0px;”][cs_column fade=”false” fade_animation=”in” fade_animation_offset=”45px” fade_duration=”750″ type=”1\/1″ class=”cs-ta-center” style=”padding: 0px;”][x_custom_headline level=”h2″ looks_like=”h2″ accent=”false” class=”cs-ta-center mtn, mbn” style=”color: hsl(0, 0%, 100%);font-style: italic;”]Supporting Each Other[\/x_custom_headline][x_custom_headline level=”h2″ looks_like=”h1″ accent=”false” class=”cs-ta-center mtn” style=”color: hsl(0, 0%, 100%);”]TSC Ireland[\/x_custom_headline][x_button shape=”pill” size=”large” block=”false” circle=”false” icon_only=”false” href=”#” title=”” target=”” info=”none” info_place=”top” info_trigger=”hover” info_content=””]Contact Us[x_icon type=”lightbulb-o” class=”mvn mls mrn”][\/x_button][\/cs_column][\/cs_row][\/cs_section][cs_element_section _id=”23″][cs_element_row _id=”24″][cs_element_column _id=”25″][x_custom_headline level=”h2″ looks_like=”h3″ accent=”false”]Skin Involvement[\/x_custom_headline][\/cs_element_column][\/cs_element_row][cs_element_row _id=”32″][cs_element_column _id=”33″] [\/cs_element_column][cs_element_column _id=”34″][cs_text _order=”0″]Individuals with Tuberous Sclerosis Complex (TSC) often see the disease manifested in the skin, including on the face, body and nails. In some cases, skin growths can become obtrusive but in most cases, the growths themselves are harmless. However manifestations such as facial angiofibromas can have a social impact and treatments are available.[\/cs_text][cs_text class=”mtm”]<\/p>\n

Skin lesions resulting from TSC include:<\/p>\n

\n
• hypomelanotic macules\u2014patches of skin lighter than the surrounding skin (can be any size or shape or may be the classic \u201cash-leaf\u201d shape)<\/li>\n
• shagreen patch\u2014a patch of skin that is tough and dimpled like an orange peel<\/li>\n
• periungual or subungual fibromas\u2014fibrous growths that appear around the fingernails and toenails;<\/li>\n
• facial angiofibromas\u2014tumors of the face Fibrous plaques sometimes appear on the forehead of individuals with TSC. There may also be fibrous, hairless scalp plaques surrounded by thin, white tufts of hair.<\/li>\n<\/ul>\n

  [\/cs_text][\/cs_element_column][\/cs_element_row][cs_element_row _id=”41″][cs_element_column _id=”42″][cs_text _order=”0″ class=”ptl”]Occasionally an individual with TSC coincidentally will have caf\u00e9 au lait spots (areas of skin darker than the surrounding skin, but lighter and usually larger than a mole), but these skin lesions are not diagnostic of TSC. A child with three or more or an adult with five or more caf\u00e9 au lait spots may be diagnosed with neurofibromatosis, another genetic condition.[\/cs_text][\/cs_element_column][\/cs_element_row][\/cs_element_section][cs_element_section _id=”49″][cs_element_row _id=”50″][cs_element_column _id=”51″][x_button type=”real” shape=”rounded” size=”x-large” block=”false” circle=”false” icon_only=”false” href=”\/donate” title=”” target=”” info=”none” info_place=”top” info_trigger=”hover” info_content=”” class=”mtl mbl”]Donate[x_icon type=”eur” class=”mvn mls mrn”][\/x_button][cs_text class=”mbl”]<\/p>\n

  Help us in our search to<\/span>
  find a cure for TSC<\/span><\/p>\n

  [\/cs_text][\/cs_element_column][cs_element_column _id=”54″][x_button type=”real” shape=”rounded” size=”x-large” block=”false” circle=”false” icon_only=”false” href=”\/contact” title=”” target=”” info=”none” info_place=”top” info_trigger=”hover” info_content=”” class=”mtl mbl”]Contact[x_icon type=”phone-square” class=”mvn mls mrn”][\/x_button][cs_text class=”mbl”]<\/p>\n

  Have a question?<\/span>
  Get in touch with TSC<\/span><\/p>\n

  [\/cs_text][\/cs_element_column][\/cs_element_row][\/cs_element_section][cs_element_section _id=”61″][cs_element_row _id=”62″][cs_element_column _id=”63″][cs_text _order=”0″]At the initial testing, the physician uses a Wood\u2019s lamp (an ultraviolet light) to better visualise the hypomelanotic macules\u2014white patches on the skin that often are difficult to see, especially on infants and people with very pale skin. The entire body should be examined. The skin should be carefully examined for the other skin manifestations of TSC as well.[\/cs_text][cs_text class=”mtm”]Some of the skin signs may not be present at birth; the facial angiofibromas do not usually appear until between the ages of 3 and 5 at the earliest, and the periungual and subungual fibromas do not usually occur until much later in life. Lesions that appear later should be noted and brought to the attention of the physician.<\/p>\n

  The most often treated skin manifestations of tuberous sclerosis complex (TSC) are the facial angiofibromas and periungual and subungual fibromas. The facial angiofibromas can be removed using dermabrasion or laser treatment; these procedures should not be considered cosmetic surgery because they treat tumors resulting from a genetic condition. Research has suggested that the facial angiofibromas should be removed (using laser treatment) when they are small, before they enlarge and become fibrous. They most likely will recur and need further treatment, but they will be milder than if left untreated.[\/cs_text][cs_text class=”mtm”]Individuals with TSC, who are interested in treatment, should see a dermatologist or a plastic surgeon that specialises in laser surgery. When screening for doctors, make sure they are qualified surgeons who have experience dealing with medical skin conditions.<\/p>\n

  Some cosmetic companies also manufacture makeup to cover hypomelanotic macules if they are large or in exposed areas of the skin. For some individuals, the hypomelanotic macules are not problematic, whereas others will chose to cover them with clothing or makeup.[\/cs_text][\/cs_element_column][\/cs_element_row][\/cs_element_section][\/cs_content]<\/p>\n","protected":false},"excerpt":{"rendered":"

  [cs_content][cs_section bg_image=”https:\/\/tscireland.org\/wp-content\/uploads\/2018\/01\/skin_banner.jpg” parallax=”false” separator_top_type=”none” separator_top_height=”50px” separator_top_angle_point=”50″ separator_bottom_type=”none” separator_bottom_height=”50px” separator_bottom_angle_point=”50″ _order=”0″ class=”cs-hide-sm cs-hide-xs” style=”margin: 0px;padding: 45px 0px;”][cs_row inner_container=”true” marginless_columns=”false” style=”margin: 0px auto;padding: 0px;”][cs_column fade=”false” fade_animation=”in” fade_animation_offset=”45px” fade_duration=”750″ type=”1\/1″ class=”cs-ta-center” style=”padding: 0px;”][x_custom_headline level=”h2″ looks_like=”h2″ accent=”false” class=”cs-ta-center mtn, mbn” style=”color: hsl(0, 0%, 100%);font-style: italic;”]Supporting Each Other[\/x_custom_headline][x_custom_headline level=”h2″ looks_like=”h1″ accent=”false” class=”cs-ta-center mtn” style=”color: hsl(0, 0%, 100%);”]TSC Ireland[\/x_custom_headline][x_button shape=”pill” size=”large” […]<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"template-blank-4.php","meta":{"footnotes":""},"_links":{"self":[{"href":"https:\/\/tscireland.org\/wp-json\/wp\/v2\/pages\/1418"}],"collection":[{"href":"https:\/\/tscireland.org\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/tscireland.org\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/tscireland.org\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/tscireland.org\/wp-json\/wp\/v2\/comments?post=1418"}],"version-history":[{"count":3,"href":"https:\/\/tscireland.org\/wp-json\/wp\/v2\/pages\/1418\/revisions"}],"predecessor-version":[{"id":1628,"href":"https:\/\/tscireland.org\/wp-json\/wp\/v2\/pages\/1418\/revisions\/1628"}],"wp:attachment":[{"href":"https:\/\/tscireland.org\/wp-json\/wp\/v2\/media?parent=1418"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}