Widespread service fragmentation for patients and families with tuberous sclerosis complex (TSC) in the Republic of Ireland.

Mary Vasseghi is a Ph.D. researcher at Trinity College Dublin and FutureNeuro and is supervised by Prof. Colin Doherty. She is conducting an in-depth research project on Tuberous Sclerosis Complex (TSC) in Ireland, which involves a widespread clinical audit as well as recommendations for future improvements in diagnosis, treatment and multidisciplinary care.

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TSC Ireland

TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.

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