Saturday the 12th of October 2024 at The Grand Hotel Malahide, Dublin
Limited spaces still available! Don’t forget to Register by emailing [email protected]. It promises to be a superb day of talks, discussion and questions and answers. Tea, coffee and refreshments on arrival plus a 2 course lunch included. See full programme below.
Programme
9:00-9:45 am Registration at The Graham Bell Suite
10:00-10:15 am Introduction & Welcome
Professor Colin Doherty Consultant Neurologist, St. James’s Hospital, Dublin; Ellen Mayston Bates, Professor of Epileptology, Trinity College Dublin; Head of School of Medicine, Trinity College, Dublin
10:15-11:00 TSC associated Neuropsychiatric Disorders (TAND) – “Empowering Families Through Technology”
Professor Anna Jansen – Professor of Child Neurology Vrije Universiteit Brussels & University of Antwerp; Head of the Paediatric Neurology Unit & Coordinator of The TSC Team at Antwerp University Hospital
11:00-11:30 Tea & Coffee; Information Stands
11:30-12:00 Developing a TSC Clinic, St. James’s Hospital
Ms. Claire Behan – Advanced Nurse Practitioner, The Department of Neurology, St. James’s Hospital, Dublin; PhD Candidate Trinity College Dublin and FutureNeuro
12.00-12:45 TSC Panel Discussion I with Q &A – Epilepsy & Neuropsychiatric Disorders in TSC
Panel: Professor Colin Doherty, Professor Anna Jansen, Ms. Claire Behan & Dr. Veronica Kelly (Consultant in Paediatric Neurodisability, Children’s Health Ireland, Our Lady’s Hospital for Sick Children, Dublin)
13:00 – 14:00
Lunch – The Coast Restaurant, The Grand Hotel, Malahide
14:00-14:20 Transition Care – Making the Move to Adult Nephrology Services
Dr. Susan McAnallen, Consultant Nephrologist, St. James’s Hospital, Dublin
14:20-14:30 Transitioning from Paediatric to Adult services: A parent’s perspective
Dr Darach Brennan, Director TSC Ireland; General Practitioner
14:30-15:00
Video Presentation from Rare Disease All-Ireland Interdisciplinary Network, followed by
TSC Panel Discussion II – TSC & Transitional Care with Q & A session
Panel : Professor Colin Doherty, Professor Anna Jansen, Dr. Susan McAnallen, Ms. Claire Behan & Dr Charlie Shepherd Retired Paediatric Consultant
15:00-15:15 Epidemiology of TSC in Ireland: Thesis Update
Mary Vasseghi, PhD Candidate, Trinity College, Dublin and FutureNeuro
15:15-15:30 TSC Ireland Committee Update
Ms. Emma Sheehan; Secretary TSC Ireland
Close of Meeting
