E-TSC Conference for Healthcare Professionals

Date and time: Friday, 7 July 2023 from 08:30 until 5pm.

Location: Trinity Biomedical Sciences Institute152 – 160 Pearse Street D02 R590 Dublin

About this event

It is with great pleasure that The European Tuberous Sclerosis Complex Association in collaboration with the Tuberous Sclerosis Complex Association Ireland invite you to join us at the DEA Pit Stop in Dublin, Ireland.

Hosting clinicians:

Prof. Colin P Doherty MD FRCPI: Ellen Mayston Bates Professor of Epileptology and Head of School, Trinity Col- lege Dublin, Ireland

Prof. Andrew Green: Professor of Medical Genetics, UCD School of Medicine and Medical Science; Consultant in Clinical Genetics, Children’s Health Ireland (CHI) at Crumlin, Dublin, Ireland.

Mary Vasseghi: Patients for Patient Safety Ireland (WHO Programme), PhD, TSC Researcher, Trinity College, Dublin & FutureNeuro, Dublin, Ireland.

Visiting clinicians:

Dr. Agnies Van Eeghen: TAND Expertise Center, ‘s Heeren Loo Care Group; the Emma Children’s Hospital, UMC, The Netherlands

Prof. Sergiusz Jóźwiak: Coordinator of Rare Disease Program, The Children’s Memorial Health Institute, Warsaw, Poland

Dr. J. Chris Kingswood: St. George’s University Hospitals, NHS Foundation Trust, London, UK

Prof. Angela Peron: Medical Genetics, Meyer Children’s Hospital IRCCS, Florence, Italy; Università degli Studi di Firenze, Florence, Italy; Division of Medical Genetics, University of Utah, Salt Lake City, USA

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TSC Ireland

TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.

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