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Insights From Paediatric & Adult Epilepsy Nurses We are delighted to welcome Claire Behan and Ann Connolly two Epilepsy Advanced Nurse Practitioners based in St James’s Hospital and Tallaght University Hospital respectively. Please join us on the night for what promises to be a very informative and interesting session on a topic that is relevant to so many living with TSC. If you would like to submit a question for the speakers in advance please email [email protected] When: Tues 19th March, 7-8pm Where: Online via Zoom – click the link below to view a recording of the webinar
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Save the date! When: Saturday May 11th Where: Fota Wildlife Park, Co. Cork More details to follow here and on our FaceBook page. We would love to see as many families and individuals affected by TSC as possible in Cork! Great opportunity to meet others in the same boat and have a fun day out together…..
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Part 3: Strategies for Sleep You can access the 3rd part in our Sleep Webinar series below as Dr Stacey Bissell brings us some more useful insight into how sleep is affected in TSC and useful strategies particularly around medication, work and school.
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The National Stud, Kildare We had a wonderful day out at the National Stud and Japanese Gardens in Kildare on 15th Oct. The sun shone on a beautiful crisp Oct day and definitely added to the experience! We enjoyed an interesting tour of the stud and grounds and had the chance to feed carrots to some of Irelands most famous racehorses! The playground was explored by the younger attendees. A delicious lunch was enjoyed by all in the restaurant followed by the option of trying out the new Racehorse Experience. The day was a lovely relaxed opportunity for those affected...
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Sleep in Adults with TSC Following on from the introductory webinar please join TSC Ireland and Dr Stacey Bissell for a session focussing on sleep challenges for Adults with TSC and some ideas to help manage these issues. Mon 4th Dec 8pm -8.45 Recording of Webinar available at the link below https://bham-ac-uk.zoom.us/rec/share/HqeYZ4wzTVIGc274pHr21u14EXpyCzbftm3qQSDaw2BvumKyrfPBspF7y-ll5HNz.-FOJMZdk_oMK1o-S Password: &BA*a7%+
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Dr Stacey Bissell BSc, MRes, PhD Dr Stacey Bissell is an Assistant Professor in the School of Psychology, University of Birmingham. She has a specific research background in tuberous sclerosis complex, helping to develop guidelines and recommendations for TSC-Associated Neuropsychiatric Disorders (TAND) as part of the international TAND consortium. She specialises in sleep-focused and behavioural research with children with TSC, but also conducts research that focuses on caregiver wellbeing and family lived experiences. Mon 6th Nov; 7.00pm – 7.45pm (20-minute presentation and 25-minute Q&A) This webinar will introduce the importance of sleep, understanding sleep in the context of TSC (e.g. epilepsy,...
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Date and time: Friday, 7 July 2023 from 08:30 until 5pm. Location: Trinity Biomedical Sciences Institute152 – 160 Pearse Street D02 R590 Dublin About this event It is with great pleasure that The European Tuberous Sclerosis Complex Association in collaboration with the Tuberous Sclerosis Complex Association Ireland invite you to join us at the DEA Pit Stop in Dublin, Ireland. Hosting clinicians: Prof. Colin P Doherty MD FRCPI: Ellen Mayston Bates Professor of Epileptology and Head of School, Trinity Col- lege Dublin, Ireland Prof. Andrew Green: Professor of Medical Genetics, UCD School of Medicine and Medical Science; Consultant in Clinical...
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VENUE: The Irish National Stud & Japanese Gardens TIME: 12:00 PM DATE: 31st August 2019 A light meal will be provided, numbers are limited. Please RSVP no later than August 15th to [email protected]
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Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co. Dublin Date: Saturday, May 12th 2018. Time: 10:00 to 13:00. Guest Speakers: Professor Andrew Tee, Senior Lecturer and Clinical Geneticist, University of Cardiff, Wales. Professor Tee is an international expert in cellular biology and genetics. He played a central role in identifying the key cellular pathways responsible for the development of Tuberous Sclerosis Complex. His research led to successful clinical trials using mTOR inhibitors to treat patients with TSC. Professor Tee will deliver a lecture on the current therapeutic developments for TSC. Ms. Patricia Byrne is the Principal Clinical Psychologist at...
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Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co.Dublin. Date: Saturday, May 13th 2017. Time: 10:00 to 14:00. Guest Speakers: Professor Patrick Bolton, BSc, MA, PhD, MBBS, FRCPsych Professor of Child and Adolescent Psychiatry at Kings College Hospital, Institute of Psychiatry, London. Dr. Peter Lavin MRCPI Consultant Renal Physician at The Adelaide & Meath Hospital, Tallaght. Dr. Helena Rushe & Dr. Cathy Madigan Dr. Helena Rushe, Senior Clinical Psychologist. Dr. Cathy Madigan, Principal Specialist in Paediatric Clinical Neuropsychology, The Children’s University Hospital, Temple Street, Dublin. Dr. Colin Doherty The meeting will be chaired by Dr. Colin Doherty, Consultant Neurologist, St....
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TSC Ireland

TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.

Recent Articles

TANDem: Empowering Families Through Technology
October 8, 2024
TSC Ireland Annual Conference
September 27, 2024
Widespread service fragmentation for patients and families with tuberous sclerosis complex (TSC) in the Republic of Ireland.
September 23, 2024