By

Xava Ireland
DEA – Dissemination of Expertise and Achievement:AIMTo create a readily accessible, active and sustainable network within and between EU countries, for healthcare practitioners treating individuals with Tuberous Sclerosis Complex.This network will facilitate the sharing of best practice within a relevant speciality as well as across disciplines when the need arises in this multi-system condition. The project aims to establish a holistic approach to the treatment of TSC and promote multi-disciplinary working across the EU. Date: 7 July 2023 Venue: The Tercentenary Hall, Trinity Biomedical Science Institute, 150-160 Pearse Street, Dublin, Ireland
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What is the study about?We are wanting to collect information about changes in behaviour, emotion, physical and mental health for people with genetic syndromes, neurodevelopmental disorders and intellectual disabilities. This is so we can understand the impact of these experiences and hopefully offer better ideas of support. Who can take part? You can take part if you are a parent or carer of an individual diagnosed with either a genetic syndrome, autism and/or an intellectual disability. The person you care for must be at least one year old. What will you ask me? We will ask you to complete a
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Date and time: Friday, 7 July 2023 from 08:30 until 5pm. Location: Trinity Biomedical Sciences Institute152 – 160 Pearse Street D02 R590 Dublin About this event It is with great pleasure that The European Tuberous Sclerosis Complex Association in collaboration with the Tuberous Sclerosis Complex Association Ireland invite you to join us at the DEA Pit Stop in Dublin, Ireland. Hosting clinicians: Prof. Colin P Doherty MD FRCPI: Ellen Mayston Bates Professor of Epileptology and Head of School, Trinity Col- lege Dublin, Ireland Prof. Andrew Green: Professor of Medical Genetics, UCD School of Medicine and Medical Science; Consultant in Clinical
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VENUE: The Irish National Stud & Japanese Gardens TIME: 12:00 PM DATE: 31st August 2019 A light meal will be provided, numbers are limited. Please RSVP no later than August 15th to info@tscireland.org
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Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co. Dublin Date: Saturday, May 12th 2018. Time: 10:00 to 13:00. Guest Speakers: Professor Andrew Tee, Senior Lecturer and Clinical Geneticist, University of Cardiff, Wales. Professor Tee is an international expert in cellular biology and genetics. He played a central role in identifying the key cellular pathways responsible for the development of Tuberous Sclerosis Complex. His research led to successful clinical trials using mTOR inhibitors to treat patients with TSC. Professor Tee will deliver a lecture on the current therapeutic developments for TSC. Ms. Patricia Byrne is the Principal Clinical Psychologist at
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Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co.Dublin. Date: Saturday, May 13th 2017. Time: 10:00 to 14:00. Guest Speakers: Professor Patrick Bolton, BSc, MA, PhD, MBBS, FRCPsych Professor of Child and Adolescent Psychiatry at Kings College Hospital, Institute of Psychiatry, London. Dr. Peter Lavin MRCPI Consultant Renal Physician at The Adelaide & Meath Hospital, Tallaght. Dr. Helena Rushe & Dr. Cathy Madigan Dr. Helena Rushe, Senior Clinical Psychologist. Dr. Cathy Madigan, Principal Specialist in Paediatric Clinical Neuropsychology, The Children’s University Hospital, Temple Street, Dublin. Dr. Colin Doherty The meeting will be chaired by Dr. Colin Doherty, Consultant Neurologist, St.
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I neglect my talents Far far away, behind the word mountains, far from the countries Vokalia and...
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Oga Mandino
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TSC Ireland

TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.

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