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deVries et al. International consensus recommendations for the identification and treatment of tuberous sclerosis complex-associated neuropsychiatric disorders (TAND), Journal of Neurodevelopmental Disorders (September 2023) Click here to learn more
DEA – Dissemination of Expertise and Achievement:AIMTo create a readily accessible, active and sustainable network within and between EU countries, for healthcare practitioners treating individuals with Tuberous Sclerosis Complex.This network will facilitate the sharing of best practice within a relevant speciality as well as across disciplines when the need arises in this multi-system condition. The...
What is the study about?We are wanting to collect information about changes in behaviour, emotion, physical and mental health for people with genetic syndromes, neurodevelopmental disorders and intellectual disabilities. This is so we can understand the impact of these experiences and hopefully offer better ideas of support. Who can take part? You can take part...
Date and time: Friday, 7 July 2023 from 08:30 until 5pm. Location: Trinity Biomedical Sciences Institute152 – 160 Pearse Street D02 R590 Dublin About this event It is with great pleasure that The European Tuberous Sclerosis Complex Association in collaboration with the Tuberous Sclerosis Complex Association Ireland invite you to join us at the DEA...
VENUE: The Irish National Stud & Japanese Gardens TIME: 12:00 PM DATE: 31st August 2019 A light meal will be provided, numbers are limited. Please RSVP no later than August 15th to
Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co. Dublin Date: Saturday, May 12th 2018. Time: 10:00 to 13:00. Guest Speakers: Professor Andrew Tee, Senior Lecturer and Clinical Geneticist, University of Cardiff, Wales. Professor Tee is an international expert in cellular biology and genetics. He played a central role in identifying the key cellular pathways...
Venue: The Grand Hotel Malahide, Grove Road, Malahide, Co.Dublin. Date: Saturday, May 13th 2017. Time: 10:00 to 14:00. Guest Speakers: Professor Patrick Bolton, BSc, MA, PhD, MBBS, FRCPsych Professor of Child and Adolescent Psychiatry at Kings College Hospital, Institute of Psychiatry, London. Dr. Peter Lavin MRCPI Consultant Renal Physician at The Adelaide & Meath Hospital,...
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TSC Ireland

TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.

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