Blog

Christmas Cards

Christmas Cards On Sale Now! Featuring beautiful winter scenes by artist Theresa Horan who’s grandson Tom lives with Tuberous Sclerosis Complex. Available in a pack of 10 cards with 2 each of 5 individual designs. Cost €10 per pack (incl P&P). Order today at the link below and help our community grow!

TANDem: Empowering Families Through Technology

Technological advancements in TAND identification and treatment will also be discussed at the TSC Ireland Annual Conference on October 12th. A self complete mobile phone app version of the TAND Checklist has been developed which, it is hoped, will reduce the identification gap of TSC-associated neuropsychiatric disorders. The app will also incorporate a toolkit of […]

TSC Ireland Annual Conference

Saturday the 12th of October 2024 at The Grand Hotel Malahide, Dublin Limited spaces still available! Don’t forget to Register by emailing [email protected]. It promises to be a superb day of talks, discussion and questions and answers. Tea, coffee and refreshments on arrival plus a 2 course lunch included. See full programme below. Programme 9:00-9:45 […]

Widespread service fragmentation for patients and families with tuberous sclerosis complex (TSC) in the Republic of Ireland.

Mary Vasseghi is a Ph.D. researcher at Trinity College Dublin and FutureNeuro and is supervised by Prof. Colin Doherty. She is conducting an in-depth research project on Tuberous Sclerosis Complex (TSC) in Ireland, which involves a widespread clinical audit as well as recommendations for future improvements in diagnosis, treatment and multidisciplinary care. This research estimates […]

TSC Ireland Annual Conference

Sat 12th Oct, 10-4pm The Grand Hotel, Malahide Join us for our annual patient and family conference this October! We have an excellent line up of Irish and International clinicians who will present clinical information and research. They will also take part in interactive discussion panels. Refreshments including lunch, tea and coffee breaks included. Free […]

TSC and TAND

Professor Anna Jansen will present at the TSC Ireland conference on October 12th 2024. Below is a recent publication that she co-authored with Petrus de Vries and others on the subject of TSC and TAND . It contains recommendations for the screening and management of what are called TSC-Associated Neuropsychiatric Disorders (TAND). Many of these […]

Irish Rare Kidney Disease Research Project

‘Stepping into the shoes of young people & families with rare renal disorders moving between child and adult services.’ This research project is being undertaken Melissa Kinch based in CHI Crumlin and UCD as part of her PhD project. “We are looking for volunteers living with a rare kidney disease (including TSC) to share their […]

TSC & Sleep Research Project – Take Part!!

An exciting opportunity to take part in TSC specific research! Dr Stacey Bissell is an Assistant Professor in the School of Psychology, University of Birmingham. She has a specific research background in tuberous sclerosis complex and specialises in sleep-focused and behavioural research with children with TSC, but also conducts research that focuses on caregiver wellbeing […]