Day

October 8, 2024
Technological advancements in TAND identification and treatment will also be discussed at the TSC Ireland Annual Conference on October 12th. A self complete mobile phone app version of the TAND Checklist has been developed which, it is hoped, will reduce the identification gap of TSC-associated neuropsychiatric disorders. The app will also incorporate a toolkit of consensus clinical guidelines for identification and treatment of TAND. Six distinct levels of TAND (shown in the digram below) have been described by the TAND Consortium. Below is a presentation by Liesbeth De Waele with an update on the progress of the project (17 minutes).
Read More

TSC Ireland

TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here.

Recent Articles

RARE DISEASE FAMILY SURVEY: SOCIAL AND ECONOMIC IMPACT
May 16, 2025
Family Fun Day Poster
TSC Family Fun Day
May 1, 2025
Impressions from Neuroscience 2024 in Chicago
November 21, 2024