DEA – Dissemination of Expertise and Achievement:AIMTo create a readily accessible, active and sustainable network within and between EU countries, for healthcare practitioners treating individuals with Tuberous Sclerosis Complex.This network will facilitate the sharing of best practice within a relevant speciality as well as across disciplines when the need arises in this multi-system condition. The project aims to establish a holistic approach to the treatment of TSC and promote multi-disciplinary working across the EU. Date: 7 July 2023 Venue: The Tercentenary Hall, Trinity Biomedical Science Institute, 150-160 Pearse Street, Dublin, IrelandRead More

What is the study about?We are wanting to collect information about changes in behaviour, emotion, physical and mental health for people with genetic syndromes, neurodevelopmental disorders and intellectual disabilities. This is so we can understand the impact of these experiences and hopefully offer better ideas of support. Who can take part? You can take part if you are a parent or carer of an individual diagnosed with either a genetic syndrome, autism and/or an intellectual disability. The person you care for must be at least one year old. What will you ask me? We will ask you to complete a...Read More