TSC Ireland was established in 2015 and registered as a charity later that year. The founding members were parents of young children with TSC who recognised the need for an Irish organisation that would support, inform and advocate for the TSC community here. The organisation has built up steadily over the years.
We hold an annual conference in Dublin aimed at families, carers and individuals with TSC. We have been fortunate to welcome expert national and international speakers who shared their knowledge on a variety of relevant topics such as neurology and epilepsy, psychology, dermatology, kidney disease and autism amongst others. This has provided an excellent opportunity for people to meet the experts, ask questions, to voice their concerns and meet others living with TSC.
We host a regular Family Fun Day which is a fun, relaxed occasion allowing families to mingle, share experiences and simply get to know each other. Our most recent Family Day was held in the Irish National Stud in Oct 2023 and was a great success.
TSC Ireland have hosted several educational webinars on a variety of topics and have more coming up soon.
You or a family member may have just been diagnosed with Tuberous Sclerosis Complex (TSC). Your next question may be now what? Find out more here.
Tuberous Sclerosis Complex (TSC) manifests itself in many different ways, but one factor individuals with TSC have in common is that they must live with the disorder their entire lives.
Although some affected children may have significant problems, such as epilepsy, and severe learning disabilities, many children who have TSC exhibit no symptoms in the classroom. The condition may impact the child’s ability to learn, his or her behavior, and relationships.
We are raising funds to help provide information and support to Patients, Families and Carers affected by Tuberous Sclerosis Complex, as well as support research into the causes and new treatments.
Please note this Contact Form is supported by volunteers. We will always try to respond to your email/enquiry in a timely manner.